Monday, August 4, 2014

Backstory and Update

So you have seen that we are dealing with "bladder outlet obstruction" possibly Eagle-Barrett Syndrome more specifically.  This is where the muscles of the abdomen don't form which allows the bladder to expand as there is nothing forcing it to evacuate.  One of the key distinctions of this syndrome is there is generally low amniotic fluid as the baby's urine (amniotic fluid) is retained in his bladder rather than outside his body.  This causes limited development of the lungs and is a fatal condition.

Our baby has had a perplexing condition of having too much amniotic fluid early in the pregnancy until week 30.  This has the docs scratching their heads wondering if maybe his lungs have developed enough to not be a fatal condition.  So around week 30, we did the first bladder tap to remove 1625 ml of urine from our baby's bladder.  Eleven days after that tap, when we went to do another tap, we found he had low amniotic fluid.  After withdrawing another 1600 ml of fluid on that trip the docs assumed that his amniotic fluid would be low for the rest of the pregnancy.

Okay, so here is where it gets very interesting; at today's appointment we find that Megan has gone from low amniotic fluid (oligohydramnios) to excess amniotic fluid (polyhydramnios) in the past nine days!  I was informed this doesn't happen.

The docs are searching for explanations to this one. 

3 comments:

Unknown said...

Thanks for the medical information. Praying for baby daily!!- Titi Meli

Unknown said...
This comment has been removed by the author.
scottmakin said...

I am with you two during this difficult time in prayer, love and concern. Let me know if i can be of any help at any time.